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Huntington's Disease Caregiving

At Home Care
What Is A Caregiver?
What Is An HD Caregiver?
Caregiving For A Spouse
Caregivers Bill of Rights
Helping Your Loved One
Your pHD Is Unique!
About Huntington's Disease
HD Articles of Interest
HD Guidebooks
Post Emergency Info
Early/ Early Intermediate Stages
Late Intermediate Stage
Swallowing Diagnostic
Speech & Language in HD
Swallowing Safety in HD
Early Advanced Stage
Swallowing Difficulties~Physician's Guide
Warning Signs of Swallowing Problems
Swallowing, Coughing, Choking & Pneumonia
Swallowing~Giving Medication
A Practical Guide: Nutrition and HD & Resources
Diet & Nutrition in HD
Nutrition and Huntington's Disease
Nutrition Information for the Care Giver
Texture & Consistency/Thining & Thickening Foods
Drinks/Shakes Recipes
Adaptive Equipment-Mealtime Help
Food Thickners
What Is A Feeding Tube?
When To Consider A Feeding Tube
Feeding Tube Decision in HD
Feeding Tube Resources
Advanced Stage
Late Stage Care
Commom Problems Encountered~Hospice Care
Temporary List of Resources
Personality Issues
Legal Issues
Disability Issues
At Home Care
Outside Care
Caregiver Tips
Caregiver Support
HD Facts
Helpful Forms-Download
Personal Articles/Stories
Miller Messages
HD Links
Fix It-R-Us?
How-To Tips
Have An HD Question?
Beautiful Memories
Caregiver's Chat Room
HD Caregiver Newsletter
Daily Humor & Health News
Dreams & Signs (Fun Stuff)
Share A Link
Send An HD Greeting Card
Location Map
Blank page
For starters........
Hiring and Utilizing (Respite) Sitters
Hospice article on what to do when hiring outside help, interviews, references, putting in writing what you expect from them, etc.
Hospice article:  Exploring Home-Care Options; Writing A Job Description; Looking For Help At Home; Interviewing The Applicant; Investigating Legal Issues;  Making Your Home Care Situation Work
Unfortunately, though, long-term home care is not always a practical solution. Home care may be sufficient and affordable if one needs help with some physical movements around the home -- bathing and getting meals, for example -- or with exercise or physical therapy or monitoring a chronic health condition. But if one needs extensive medical treatment, or close monitoring for many hours each day, the difficulty of arranging different types of care may make home care impractical -- and the cost may become prohibitive. In most cases, long-term home care also requires family members who can fill in gaps that the outside care services do not cover. For many people without such family assistance, long-term home care is simply not an option........